Group wears blue to honor ailing children

BIRMINGHAM, Ala. (WIAT) — Whether it’s a medical problem or something else, every one of us probably knows a tough kid who is going through some hard times.

On Sunday, a group of people decided to wear blue in honor of those tough kids. A little boy named Bryan Carr helped inspire the trend.

March 2nd is his birthday and blue was his favorite color.

He passed away at the age of four, but not before he taught his family the meaning of tough.

Byan Carr had an extremely rare immune disorder known as PNP deficiency. According to his parents, it’s a form of severe combined immune deficiency, or bubble boy disease.

“This condition it’s less, maybe 75 cases diagnosed in the past almost 40 years,” said Christine Carr.

Bryan stayed sick all the time and walking was a challenge, but that didn’t stop him from trying.

“The tenacity and the toughness that he had is that he wanted to keep up. he didn’t let obstacles stand in his way,” said Jay Carr.

The 4-year-old battled through chemotherapy and a bone marrow transplant. Then when things were looking up, there was a complication. Bryan endured pain and suffering that is hard to describe especially for a parent.

“The doctors didn’t expect him to live a month when all of the complications started to show up, but he fought and fought and he was in the hospital for ten months before he passed. He was just one tough kid,” said Christine Carr.

The Carr family set up a website to honor tough kids. They want to be a source of praise and encouragement to those kids who are dealing with extraordinary problems with smiles on their faces, kids like Bryan.

“Through our journey with him we met other children like him no matter the disease or the difficulty there are so many children out there that endure great things and if we let their stories sink into our hearts it changes us as people,” said Christine Carr.

For more information on the organization, click here and here.

 

2014 WIAT-TV CBS42

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